Links to Larynx Cancer Resources

American Cancer Society (ACS) - Larynx Cancer Section 
This multi-page site covers the entire range of larynx cancer issues: What Is It, Key Statistics, Risk Factors, Causes, Preventions, Detection, Diagnosis, Staging, Treatments Available, Post-Treatment Factors, What To Ask, What's New, Recommended Reading, and References.  A GREAT, comprehensive Web Site!!

American Academy of Otolaryngology - Head & Neck Surgery, Inc.
The world's largest organization of physicians dedicated to the care of ear, nose and throat disorders. 

American Speech-Language-Hearing Association
ASHA is the professional, scientific, and credentialing association for more than 96,000 audiologists, speech-language pathologists, and speech, language, and hearing scientists.

BBC Tyne
"BBC Tyne" in the UK has made two "videos" showing a gentleman using an electrolarynx.  You will need "RealPlayer" or the AOL Media Player to view them.  Links to these are as follows:
http://www.bbc.co.uk/tyne/videonation/stories/man_from_mars.shtml
http://www.bbc.co.uk/tyne/videonation/stories/cat.shtml

Canadian Society of Otolaryngology - Head & Neck Surgery
Home page of this Canadian organization.

Cancer of the Larynx
Now at a NEW URL, this is a laryngectomee managed web site and is the "home base" for the s, Inc. See description below under WebWhispers Inc.

CanSearch 
An outstanding guide to information, provided by the National Coalition for Cancer Survivorship.

The Cancer Group Institute 
Located in Miami Beach, Florida, the Cancer Group Institute's material explains the definition, locations, types, symptoms, evaluations, historical and latest effective treatments for larynx cancer. They describe surgery, radiation, and chemotherapy along with their side-effects and results. They tell you most everything you need to know to help make correct choices today for a larynx cancer problem. However, these materials are not available on line; they must be ordered and there is a modest S&H charge.

Communicative Aid Manufacturers Association (CAMA)
P.O. Box 1039, Evanston, Illinois 60204; Tel: 1-800-441-CAMA (2262).  CAMA is a not-for-profit organization of the world's leading manufacturers of augmentative and alternative communication (AAC) software and hardware products.  Currently, the CAMA website lists approximately 22 suppliers of such equipment ... which may assist laryngectomees whose condition may not permit the use of the AL, TEP, or esophageal speech options.  A packet of catalogs from the CAMA members is available FREE of charge by placing your request on their web page - http://www.aacproducts.org/  

Dana-Farber Cancer Institute
Internationally renown for blending basic and clinical research and bringing new treatments from the laboratory to the patient's bedside, Dana-Farber is a principal teaching affiliate of the Harvard Medical School and a founding member of the Dana-Farber/Harvard Cancer Center, one of 37 comprehensive cancer centers designated by the National Cancer Institute. Their web site was launched in August 2001 and won the award for top health-care site from the Massachusetts Interactive Media Council.  Click HERE for their Head and Neck Cancer Section.

Deaf and Disabled Telecommunications Program 
Web site for California's DDTP Committee.   Contains information about free communication equipment available for disabled residents with a CA phone number.

EMedicince.com
Excellent article about laryngectomee rehabilitation by Dr. Lori Lombard, U. of Pittsburgh Medical Center

Emergingmed.com
"Your Link to Clinical Trials" - a matching and referral system designed to simplify your search for promising new cancer treaments

The Facts About ... Laryngectomy
A brief coverage of the causes and the processes of a laryngectomy - provided by the San Francisco VA Medical Center. 

Guide to Internet Resources for Cancer
This UK-based site (U. of Newcastle) provides a "linked" index of over 2,000 cancer related Web Sites sorted by disease, country, etc. - of interest to professionals as well as patients, family, or friends.  Larynx Cancer links are listed under the "Head and Neck Cancer" Heading.

Head and Neck Cancer, CancerLinksUSA.com
Excellent on-line source for larynx cancer information with links to many other related sites.

HealthFinder®español
This new easy-to-use Spanish-language consumer resource offers over 300 topics from 70 government agencies and nonprofit organizations. A unique feature of healthfinder® español is the ease with which users of the site can switch between Spanish and English versions of the same information. English-speaking family members or health professionals can use this feature to search in English for information to share with Spanish-speaking relatives or patients.

HealthGrades.com
HealthGrades.com™’s goal is to provide information to consumers that helps them select the best quality providers of medical care. The one-of-a-kind Internet service supplies valuable information about the quality of health care provided by individual hospitals, physicians, and health plans in the United States. Most individuals know that the quality of care offered by different hospitals, hospital departments, and physicians varies. However, most people do not know where to get answers to questions, such as: Which hospital in my area has the lowest mortality rate for coronary bypass surgery? Where can I get a list of the leading physicians within 10 miles of my home? Which health plan offers the best access to hospitals and physicians? Questions like these are answered by HealthGrades.com™.

Healthtouch OnLine - Laryngeal Cancer
Symptoms, Diagnosis, Treatments, Side-Effects, Rehabilitation, Causes and Prevention and Additional Resources for Information.

HealthSCOUT - Laryngeal Cancer
Another good explanation of Larynx Cancer - symptoms, treatments, clinical trials, definition of terms, many links to further information.

The Head and Neck Surgery Clinic of Houston
Good, short discussion of True Cord Cancer, Supraglottic Cancer, and Subglottic Squamous Cell Carcinoma; other oral cancers are also addressed.

Interactive Head and Neck Cancer Patient Education Program
This interactive patient education and decision-making program was written to serve as an educational and general reference to aid newly-diagnosed head and neck cancer patients understand their disease.  It is not, however, intended to replace discussions with a healthcare provider. (Washington University School of Medicine)

The Internet-Health-Directory
Another source for Larynx Cancer related web sites on the Internet

Lance Armstrong Foundation
The mission of the Lance Armstrong Foundation is to enhance the quality of survival of those diagnosed with cancer. The LAF seeks to promote the
optimal physical, psychological, and social recovery and care of cancer survivors and their loved ones. Please visit the LAF at www.laf.org.

LaryCare.com
This site is sponsored by Atos Medical, the manufacturer of Provox. It is designed to be a forum for sharing information, getting advice, and meeting other laryngectomees.  Site is edited by Jonas Karling, Speech Pathologist, PhD.

The Larynx Cancer Online Support Group
As of the end of 2003, this "list" had about 152 active members.  You can join this mailing list group by sending the following message "sub LARYNX-C your name" (e.g. sub LARYNX-C Dan Marino) from your Email address to listserv@listserv.acor.org

Laryngeal Cancer Resource Center
A physician guided website for laryngeal cancer patients, their families, and caregivers. Excellent LINKS and a good starting point for laryngeal cancer information on the web.

LaryngectomyLife
A fellow laryngectomee, UK resident Steve Bishop, a laryngectomee since February of 2001, has created a NEW web site for laryngectomees, families, friends, and professionals.  The new web site is called: "LaryngectomyLife" and can be found at the following address:   http://www.laryngectomylife.com/ 
The site is divided into several useful sections: News, What's New, Clubs, Picture Gallery, Useful LINKS, a moderated Forum, a History of the Laryngectomy (the operation), and a section devoted to the operation itself, with post-op pictures from one operation over about eleven days of recuperation.

Massachusetts Eye and Ear Infirmary
The Massachusetts Eye and Ear Infirmary is a specialty hospital providing unparalleled patient care for disorders of the eye, ear, nose, throat, head and neck. The Infirmary is also an international leader in research and teaching partner of Harvard Medical School. Founded 176 years ago in Boston, today the Infirmary is a global resource for patients and clinicians alike.

MayoClinic.com - "Understanding Cancer Treatment
An excellent series of articles dealing with all of the primary treatments ... a GREAT OVERVIEW!

MedBioWorld
Medbioworld is the largest site for access to medical journals and associations in every field of health and medicine. Links to their ENT/Otolaryngology Journals and Associations are as follows:
* ENT/Otolaryngology Journals:  http://www.medbioworld.com/med/journals/oto.html
* ENT/Otolaryngology Associations:  http://www.medbioworld.com/med/assoc/ent.html

Medicine Net
Description of larynx and larynx cancer, causes, symptoms, diagnosis, treatment options and methods, new studies, side effects, post-surgery rehabilitation, new voice options, and support groups.

Milton J. Dance Jr., Head and Neck Rehabilitation Center
Comprehensive rehab services for Head and Neck cancer patients.

The Mining Company - Head and Neck Cancer Links
Great comprehensive listing of Head and Neck Cancer sites on the Internet ... constantly updated.

National Association of Laryngectomee Clubs
England's Laryngectomee Association: 6 Rickett Street, Fulham,  LONDON SW6 1RU, Tel/fax 0171-381 9993, (Publishes a quarterly free newsletter (CLAN) distributed worldwide.)

National Cancer Institute -  CancerNet & PDQ Files 
Head and Neck Cancer Issues - CancerNet and the NCI's PDQ files tell about the current treatments for most cancers, the site linked here is specific for larynx cancer and other head and neck cancers. The information in PDQ is reviewed each month by cancer experts. It is updated when there is new information. The patient information in PDQ also tells about warning signs and how the cancer is found. PDQ also lists information about research on new treatments (clinical trials), doctors who treat cancer, and hospitals with cancer programs.

National Council on the Aging - BenefitsCheckUp
The National Council on the Aging created BenefitsCheckUp to help older adults to quickly identify programs that may improve the quality of their lives. Family and friends can also obtain facts about benefits that their loved ones may qualify for. Chances are, you will be surprised to learn what benefits are available to you, regardless of your income.  Here's how it works: You take 10 or 15 minutes to enter information about your financial situation into an online questionnaire. Then, BenefitsCheckUp explains what benefit programs you may be eligible for and how to apply for them.

NeckBreathers
A UK-base web site - an information site for laryngectomees by a laryngectomee. Selected newsletters, articles, and links to other informational sources.

New Voice International Association of Laryngectomees Puerto Rico Inc.

NeedyMeds.com
Many pharmaceutical manufacturers have special programs to assist people who can't afford to buy the drugs they need. One problem is that it's often hard to learn about these programs. Each company has its own program with its special requirements, forms, and procedures. Actually, some companies have different programs for different drugs. There is no central clearinghouse for obtaining information about these programs or the drugs themselves. The goal of this unique web site is to make this information easily accessible.

1UpHealth 
Medical resource provides comprehensive and authoritative information and news on diseases, symptoms, tests, surgery, injuries, nutrition, medications, and poisons. Focuses on family and community health.

OncoLink
A great resource for all types of cancer information

OnHealth.com -Throat Cancer Section
Good description of symptoms, causes, treatments, though a rather meager listing of related links.

Organization of Women Laryngectomy Survivors (Temporarily Not Operating)
The mission of the Organization Of Woman Laryngectomy Survivors {OOWLS} is to provide education, resources and hope through emotional support to woman throat cancer victims, their family and caretakers.

Support for People with Oral and Head and Neck Cancer, Inc.
During the past ten years, SPOHNC's program of support has become a source of information for oral and head and neck cancer patients who are trying to gain a better understanding of their illness and their lives. News From SPOHNC, a newsletter published by the organization, hopes to increase awareness of the many ongoing issues related to oral and head and neck cancer while offering information, support and encouragement. This newsletter is published nine times each year from September through June. SPOHNC charges a $20.00 annual membership fee.

Taking The Fear Out Of Cancer
A site providing cancer awareness through education and information, and inspiring hope to all people dealing with cancer - patients, families, caregivers, friends.

The Union of Swiss Laryngectomee Clubs
Die Union Schweizerischer Kehlkopflosenvereinigung ist eine Selbsthilfeorganisation welche Menschen vereinigt, die kehlkopflos sind. Wir vermitteln nebst unseren Erfahrungen auch alle nötigen Hilfsmittel.

University of Bonn, Germany
A CancerNet article - Description (larynx/larynx cancer), treatment options overview, explanation of the stages of the cancer, recurrent cancer, further information/guidance.

University of North Carolina - GREAT for additional specific information on the Tracheoesophageal Puncture (TEP) and the Voice Prosthesis! CONTENT: Pre-op Orientation | Tracheoesophageal Puncture (TEP) | Directing Airflow in TEP | The Voice Prosthesis | Hospital Course Post Operation | Fistula Dilation for Placement of Indwelling Prosthesis | Candidacy for TEP | Supraglottic laryngectomy | Clinician Information

University of Pennsylvania 
General Information on ALL Head and Neck Cancers, important meeting minutes/summaries, numerous CancerNet articles - 1997-1999.

University of Pennsylvania 
Article on Preserving Normal Speech - A somewhat scholarly article, "Fighting Cancer and Preserving Function", focusing on new surgery techniques, short of a total laryngectomy, that, through reconstruction of tissue, attempt to preserve normal swallowing and speech.

University of Western Ontario
Alaryngeal Speech Options Explained

U.S. News and World Report
Their annual listing (for 2004) of the best Otolaryngology hospitals in the USA.

The Virtual Medical Center: Larynx Cancer
What is Larynx Cancer, Detection and Diagnosis, Treatments, Rehabilitation, Hopes for the Future, 7 Steps to Health.

The Voice Center
Eastern Virginia Medical School, Norfolk, VA.- clear explanations of laryngeal cancer treatment, stages of the cancer, description of a total laryngectomy surgery and an exploration of the speech options thereafter. Links to other sites.

Voice Rehabilitation After Total Laryngectomy
Written by Dr. Wilko Grolman in the Netherlands, this site discusses the different voice rehabilitation techniques available after a total laryngectomy. Many topics are illustrated by images explaining the differences between voice rehabilitation methods.

VOICESTORE.COM
Jim Lauder's "VoiceStore.com" contains an excellent FAQ Section (Frequently Asked Questions).  New and old laryngectomees might benefit from many of these "answered questions."

WebWhispers Inc. 
WebWhispers, an online laryngectomee support group with almost a thousand members world-wide, is the largest and most active laryngectomee support group on the Internet and is an IAL-affiliated club. Along with two Email ListServs, a monthly newsletter and a loan closet, the club also offers extensive information on larynx cancer, its symptoms, diagnosis, treatment options, post-operative voice options; plus links to healthcare providers, laryngectomee product suppliers, laryngectomee-friendly recipes, and local support clubs. Use and participation are free, although users may wish to voluntarily become Voting Members via a $5.00 annual donation.  A valuable and "must visit" site.

The Yul Brynner Head and Neck Foundation
Founded by Yul Brynner and Dr. George Sisson in 1983 to further the education, research, treatment and support for head and neck cancer, the Foundation attempts to spread the word about head and neck cancer and the difficulties incurred by those stricken with the disease - and how these can be overcome until prevention and cure become realities.  They sponsor an International Head and Neck Cancer Awareness Week each year.